Adolescents and Young Adults (AYA)
Adolescents and young adults (AYA) diagnosed with cancer have been defined as a population to be in the age range 15 through 39. This broad age span creates special challenges in the care and treatment of AYA patients. This guide provides general background resources about the AYA population, as well as resources that touch upon some of these challenges; i.e. inclusion in clinical trials, models of care, psychosocial needs, survivorship issues, & fertility preservation. Some resources may require USC login.
The Fault in Our Stars
JOIN US!!!
Thursday, October 8, 2015 : 5:30 - 9pm
USC Health Science Campus
Aresty Auditorium @ Harlyne J. Norris Research Tower (NRT)
Free pizza, cookies, & bottled water
Discussion to follow
Runtime: 125 min.
Hazel and Gus are two teenagers who share an acerbic wit, a disdain for the conventional, and a love that sweeps them on a journey. Their relationship is all the more miraculous given that Hazel's other constant companion is an oxygen tank, Gus jokes about his prosthetic leg, and they met and fell in love at a cancer support group. The Fault in Our Stars.
Free admission - Click here to RSVP.
RSVPs are required however do not guarantee a seat.
All Filmology events are OVERBOOKED to maximize seating capacity in the theater.
The RSVP list will be checked on a first-come, first-served basis until the theater is full. Once the theater has reached capacity we will no longer be able to admit guests, regardless of RSVP status.
Evening Agenda
5:30-5:55pm Doors Open / Pizza Served
5:55-6:05pm Welcome / Bios
6:05-8:10pm Film Screening (125 min)
8:10-8:20pm Short Q&A
8:20-9:00pm Moderated Discussion
- NML The Fault in Our Stars - Full Size Publicity PosterClick the link and then the download button. You do not need to sign in to Dropbox.
Facts about cancer in AYA
https://www.cancer.gov/PublishedContent/Images/images/snapshots/2014/english/2014_AYA_BAR_v6-side.png
Cancer in Adolescents and Young Adults by Call Number: Norris Medical Library, Upper Level, QZ 275 C215 2007Publication Date: 2007-08-28
The Emperor of All Maladies by Call Number: Norris Medical Library, History Books, WH 11 AA1 M953e 2010Publication Date: 2010-11-16
Unique needs for AYA patients
- Adolescent and Young Adult Oncology Progress Review Group (PRG)This 2006 NCI seminal, comprehensive report was the first to outline recommendations for improving the outcomes for adolescents and young adults with cancer. See the key recommendations below.
https://www.ncbi.nlm.nih.gov/books/NBK179882/
- Identifying and Addressing the Needs of Adolescents and Young Adults with Cancer: Workshop Summary.This 2013 NIH workshop summary reports on the progress made since the 2006 NCI Progress Review Group Report and implementation. Click on "PDF version of this title" to access full text.
- National Cancer Institute - Reports, Research, and LiteratureNCI has produced and collaborated many reports that address the special challenges facing young people with cancer.
Journals
Below you will find links to some of the more well known Pediatric Oncology journals. This list is not exhaustive.
- Journal of Adolescent and Young Adult Oncology (JAYAO)The first cancer journal dedicated to the YA oncology patient population.
- Convergent Science Physical OncologyAn open access multidisciplinary journal focusing on cancer research, serving the general public, academic and clinical communities. Unique to this journal is the inclusion of a patient advocate as part of the editing team.
- USC cancer experts lead launch of convergent science journalRead about USC cancer experts' role in the launch of the Convergent Science Physical Oncology journal, as well as the structure of the information in the journal.
Clinical Trials in AYA
- Surveillance, Epidemiology and End Results (SEER) This link opens in a new windowThe Surveillance, Epidemiology, and End Results (SEER) Program of the National Cancer Institute (NCI) is an authoritative source of information on cancer incidence and survival in the United States.
- Stand Up To Cancer (SU2C) - Pediatric Dream Team Progress ReportThe SU2C Pediatric Dream Team aims to establish the foundation for a sustained effort to maximize pediatric cancer cure rates through a genomics-anchored immunotherapeutic program. Read about their progress here.
- USC Works With "Dream Team" to Deliver Promise of Epigenetic Therapy to Clinical PracticeRead about USC's participation in four lung cancer clinical trials in partnership with Johns Hopkins and SU2C.
The Fault in Our Stars - Trailer
Moderators
Marisa Perdomo, PT, DPT, MS,CLT, CCES
Dr. Perdomo is an Assistant Professor in Clinical Physical Therapy at the University of Southern California and has over 30 years of clinical practice focusing on orthopedic, oncologic, lymphatic dysfunctions and integrated health. She is a survivor of both Hodgkin’s lymphoma and breast cancer. Her personal experience with long-term survivor physical impairments and life-long practice of optimizing function fuels her passion for creating integrative rehabilitation interventions. At USC she developed a physical therapy practice for cancer survivors as well as curricular content regarding the management of oncological related impairments. Click here for full bio.
Stories from AYA patients
This Should Not Be Happening by Publication Date: 2014-01-01
Survivors of Childhood and Adolescent Cancer by Call Number: Norris Medical Library, Upper Level, QZ 266 S963 2005Publication Date: 2005-03-21
Treatment
Pediatric Oncology by Publication Date: 2014-07-05
Principles and Practice of Pediatric Oncology by Publication Date: 2011
Global Perspective
- The Cancer AtlasA comprehensive global overview about the burden of cancer, risk factors, and prevention & control.
- Johnson, R (12/2013). "AYA in the USA. International Perspectives on AYAO, Part 5.". Journal of adolescent and young adult oncology (2156-5333), 2 (4), p. 167.International Perspectives on AYAO is a 5 part series of articles from presentations from the 2nd international workshop of the Canadian National Adolescent and Young Adult Cancer Task Force, held in March 2012. Scroll down to "Users who read this article also read" to access parts 1-4.
Learn more about the film
- The Fault in Our StarsOfficial film website.
- Cancer When You're Young Isn't Always 'The Fault In Our Stars'NPR interviews with AYA survivors.
Moderators
Dr. Caryn Roach, OTD, OTRL
Caryn Roach is an occupational therapist at Keck Medical Center of USC and City of Hope, with a primary interest in the oncology population. She works closely with the Adolescent and Young Adult Cancer Program at USC (AYA@USC) to bring services to this unique population. Dr. Roach’s interest in this population developed after being diagnosed with Hodgkin’s lymphoma. Her personal experience with battling cancer, as well as input from cancer survivors that she has met along her journey, has helped guide her work as a clinician and build strong connections with her patients and their families. Click here for full bio.
Deborah Morgan, MSN, RN, OCN
Debbie Morgan is a Master's prepared, Oncology-certified nurse. Debbie currently works as a Nurse Navigator with the Adolescent and Young Adult Cancer Program at USC (AYA@USC). Her primary role is to educate young adult cancer patients on the unique needs and various issues that can arise with cancer and its related treatment, specifically fertility and sexual health. She has been invited to lecture on AYA issues to undergraduates, medical students, graduates, and fellows in medical oncology/hematology. Click here for full bio.
Psychosocial Issues
Pediatric Psycho-Oncology by Call Number: Norris Medical Library, Upper Level, QZ 275 P37122 2015Publication Date: 2015-03-04
Survivorship
Fertility Preservation
USC Programs
- AYA@USC - The Adolescent and Young Adult Cancer Program at USCLaunched in 2010, AYA@USC is one of the first programs to comprehensively address the needs of the AYA cancer patients. This site contains a wealth of information about AYA cancers, educational resources, and links to affiliated groups & programs.
- AYA@USC Fellowship ProgramsThis site provides information about various fellowship opportunities medical students interested in AYA oncology. Links to videos from the DAVID STROUD Adolescent and Young Adult Oncology Symposium can be found here as well.
- CHLA Hope PortalThe HOPE Portal is a site developed by Children's Hospital Los Angeles for finding resources and information about childhood cancer, blood disorders and other rare diseases or conditions.
- USC Division of Biokinesiology and Physical Therapy - Cancer CareLearn about physical therapy services for cancer care.
- USC Mrs. T.H. Chan Division of Occupational Science and Occupational TherapyLearn about the hospital-based occupational therapy programs available for oncology patients at Keck Hospital of USC and USC Norris Cancer Hospital.
David Stroud AYA Symposium
- David Stroud Symposium VideosWatch videos from the 2013 David Stroud AYA Symposium to hear national leaders in the field of AYA oncology speak about best practices, models of care, research, survivorship, patient support and more.